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WHAT IT IS AND WHAT IT ISN’T DEMENTIA ALZHEIMER’S DISEASE Jo T. Letwaitis, President/CEO The Senior Site, Inc. www.TheSeniorSite.com 630-200-1149 or [email protected]

Dementia Ssi

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Page 1: Dementia Ssi

WHAT IT ISAND

WHAT IT ISN’T

DEMENTIAALZHEIMER’S DISEASE

Jo T. Letwaitis, President/CEOThe Senior Site, Inc. www.TheSeniorSite.com

630-200-1149 or [email protected]

Page 2: Dementia Ssi

ALZHEIMER’S DISEASE: A DEGENERATIVE DISORDER THAT

AFFECTS THE BRAIN AND CAUSES DEMENTIA, ESPECIALLY LATER IN

LIFE.

MICROSOFT ENCARTA COLLEGE DICTIONARY

definition

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INCREASED INCIDENCE – 350% WITHIN THE FIRST FIFTY YEARS OF THIS DECADE

ALZHEIMER’S ASSOCIATION ESTIMATES 5 MILLION PRESENT DAY SUFFERERS

BY 2050 THAT NUMBER WILL RISE TO 14 MILLION

50% WILL DEVELOP ALZHEIMER’S IF WE LIVE PAST AGE 85

OF ALL DEMENTIA-RELATED DEATHS, 70% ARE RELATED TO ALZHEIMER’S

33% IS RELATED TO GENETICS AND THE REMAINING 64% TO LIFESTYLE

Alzheimer’s Diseasestatistics

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WHAT IT ISWHAT IT IS WHAT IT ISN’TWHAT IT ISN’T

A chronic, generative disease

FatalAffects older

individualsTreatableA cause of dementiaCaused by a variety of

factorsDetectable with testing

Mental illnessUnavoidableCaused by agingInevitableThe prevalent cause

of memory lossWidely inheritedApparent physically

in its early stages

ALZHEIMER’S DISEASE

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Stage one:No cognitive impairment – unimpaired individuals

experience no memory problems; none are evident to a health care professional during medical interview

Stage two:Very mild decline – memory lapses, forgetting

familiar words or names or locations, yet not evident during exam or apparent to others

The many stages of Alzheimer’s

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Stage three:

Mild cognitive decline – those around begin to notice changes such as problems with memory or concentration

Words and name finding noticeable

Decreased ability to remember

Performance issues; retaining little

Misplacing valuable objects

Decline in ability to plan or organize

STAGES CONTINUED

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Stage four: Moderate cognitive decline (mild or early-stage Alzheimer’s disease)

Careful medical interview can detect deficiencies in the following areas:

Decreased knowledge of recent eventsImpaired ability to perform mental arithmetic

Decreased capacity to perform complex tasks such as planning a dinner, paying bills

Reduced memory of personal historyPerson may seem subdued and withdrawn

STAGES CONTINUED

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Stage five: Moderately severe cognitive decline or

Moderate/mid-stage Alzheimer’s disease

Major gaps in memory and deficitsUnable to recall important details

Become confused about surroundingsNeed help choosing proper clothing

Can retain substantial knowledge of themselves, eg nameRequires no assistance, usually, with eating and using the toilet

ALZHEIMER’S STAGES CONTINUED

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Stage six: Severe cognitive decline or

Moderately severe/mid-stage Alzheimer’s disease

At this stage, individuals may:

Lose most awareness of recent experiencesRecollect their personal history imperfectly, although they ay recall their

own nameOccasionally forget the name of spouse or primary caregiver

Need help getting dressed properlyExperience disruption of normal sleep/wake cycle

Trouble toiletingExperience significant personality changes

Tend to wander and become lost

STAGES CONTINUED

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Stage seven: Very severe cognitive decline or severe/late-stage Alzheimer’s disease

Some lose their ability to speakIndividual lose capacity for recognizable speech, although some words

are utteredNeed help eating and toileting with general urinary incontinence

Lose the ability to walk without assistanceReflexes become abnormal and muscles grow rigid

Swallowing is impaired

LAST STAGE

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WHAT CAN BE DONE?

EARLY DETECTION - learn these subtle detectors

FINGERPRINTS – whorls and arches decrease with Alzheimer’s

SENSE OF SMELL – can experience a loss of the sense as early as two years prior to cognition problems

VISION – may not be able to interpret sights, eg clock test HEARING – loss is more prevalent DEPRESSION – can surface two years prior to detection PROFESSIONAL TESTING – not yet 100% accurate NEUROPSYCHOLOGICAL TESTING – noninvasive way to

appraise different areas of the brain TESTING FOR CEREBROSPINAL FLUID PROTEINS

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NUTRITION – REALLY?

CHECK YOUR DIET, WHAT ARE YOU EATING?

HOW ABOUT: FAT AND SALT – THE EVIL TWINS ESSENTIAL FATTY ACIDS – OMEGA-3 AND OMEGA-6

OMEGA-3 IN FLAXSEED, FLAX OIL; ENGLISH WALNUTS, SOYBEANS, TOFU

OMEGA-6 FOUND IN ANIMAL PRODUCTS – KEEP A BALANCE

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THE NUN STUDY – KEEP LEARNINGCONTINUE SOCIALIZING

TAKE CHARGE OF YOUR STRESS

REMOVE YOUR STRESSORS

EXERCISE YOUR BRAIN THROUGH DAKIM BRAINFITNESS OR OTHER BRAIN

EXERCISES

EXERCISE YOUR BODY

YOUR BRAIN – USE IT OR LOSE IT?

Page 14: Dementia Ssi

WHAT ABOUT YOU?WHAT DO YOU DO NOW?

WHAT’S GOING TO HAPPEN?

ARE YOU THE

SPOUSE

ADULT CHILD

RELATIVE

LOVED ONE

CAREGIVER

OF SOMEONE

WITH

DEMENTIA?

Page 15: Dementia Ssi

YOU WILL FEEL:ALONEANGRYUPSETHURTGUILTY

FRUSTRATED WITH THEM AS WELL AS YOURSELF

IMPOTENT TO DO ANYTHING

Living with, or otherwise caring for, someone with

dementia

Page 16: Dementia Ssi

BEGIN BY EDUCATING YOURSELF ON THE DISEASE

THEY SAY “KNOWLEDGE IS POWER” – IT IS!

AS A STUDENT OF NAOMI FEIL I CAN SINCERELY SAY THAT HER RESEARCHED METHOD, THE

VALIDATION METHOD, WORKS FOR COMMUNICATING

GO TO WWW.VFVALIDATION.ORG FOR EDUCATIONAL MATERIALS

AFTER THE DIAGNOSIS

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Validation is a method of communicating with and helping disoriented very old people.

It is a practical way of working that helps reduce stress, enhance dignity and increase happiness. Validation is built on an empathetic attitude and a holistic view of individuals.

When one can "step into the shoes" of another human being and "see through their eyes," one can step into the world of disoriented very old people and understand the meaning of their

sometimes bizarre behavior.

Validation theory explains that many very old disoriented people, who are often diagnosed as having Alzheimer type dementia, are in the final stage of life, trying to resolve unfinished issues in order to die in peace. Their final struggle is important and we, as caregivers, can

help them.

Using Validation techniques we offer disoriented elderly an opportunity to express what they wish to express whether it is verbal or non-verbal communication.

What is Validation?

Page 18: Dementia Ssi

Validation has three basic components

Validation is a theory that very old people struggle to resolve unfinished life issues before death. Their behavior is age-specific. Their movements reflect human needs.

Validation is a way of classifying their behaviors into four progressive stages:

Malorientation- expressing past conflicts in disguised forms.

Time confusion- no longer holding onto reality; retreating inward.

Repetitive motion- movements replace words and are used to work through unresolved conflicts.

Vegetation- shuts out world completely and gives up trying to resolve living .

Each phase has specific physical and psycho-social characteristics.

Validation includes specific techniques for individual as well as group work, based on the needs of the individual and his or her phase of resolution.

Examples…………………

Page 19: Dementia Ssi

1. All very old people are unique and worthwhile.

2. Maloriented and disoriented old people should be accepted as they are: we should not try to change them

3. Listening with empathy builds trust, reduces anxiety and restores dignity

4. Painful feelings that are expressed, acknowledged and validated by a trusted listener will diminish.

5. There is a reason behind the behavior of very old maloriented and disoriented people

Examples of Validation principles

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6. The reasons that underlie the behavior of maloriented or disoriented very old people can be one or more of the following basic human needs:

resolution of unfinished issues, in order to die in peace To live in peace Need to restore a sense of equilibrium when eyesight, hearing, mobility

and memory fail. Need to make sense out of an unbearable reality: to find a place that feels

comfortable, where one feels in order or in harmony and where relationships are familiar.

Need for recognition, status, identity and self-worth Need to be useful and productive Need to be listened to and respected. Need to express feelings and be heard. Need to be loved and to belong: need for human contact Need to be nurtured, feel safe and secure, rather than immobilized and

restrained. Need for sensory stimulation: tactile, visual, auditory, olfactory, gustatory,

as well as sexual expression Need to reduce pain and discomfort

Examples of Validation principles

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7. Early learned behaviors return when verbal ability and recent memory fails8. Personal symbols used by maloriented or disoriented elderly are people or things (in present time) that represent people, things or concepts from the past that are laden with emotion. 9. Maloriented and disoriented old people live on several levels of awareness, often at the same time10. When the 5 senses fail, maloriented and disoriented elderly stimulate and use their "inner senses'. They see with their "mind's eye' and hear sounds from the past.

Examples of Validation principles

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Call or email: The Senior Site, [email protected]

QUESTIONS ARE HONORED WITH ANSWERS

THANK YOU

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THANKS AND CREDITS TO:

Naomi Feil Validation Method for knowledge on communication methods

www.vfvalidation.org

Alzheimer’s - A Message of Hope

By: Dr. Abraham Isaac Anbar