Can I Tell You About Asperger Syndrome? - Jude Welton

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Can I tell you about Asperger Syndrome?also by Jude WeltonWhat Did You Say? What Do You Mean?An Illustrated Guide to Understanding MetaphorsJude Welton and Jane TelfordISBN 978 1 84310 207 6Adams Alternative Sports DayAn Asperger StoryISBN 978 184310 300 4of related interestMy Social Stories BookCarol Gray and Abbie Leigh WhiteIllustrated by Sean McAndrewISBN 978 185302 950 9Aspergers SyndromeA Guide for Parents and ProfessionalsTony AttwoodISBN 978 185302 577 8Freaks, Geeks and Asperger SyndromeA User Guide to AdolescenceLuke JacksonISBN 978 184310 098 0Can I tell you aboutAsperger Syndrome?A guide for friends and familyJude WeltonIllustrated by Jane TelfordForeword by Elizabeth NewsonJessica Kingsley PublishersLondon and PhiladelphiaFirst published in the United Kingdom in 2004by Jessica Kingsley Publishers116 Pentonville RoadLondon N1 9JB, UKand400 Market Street, Suite 400Philadelphia, PA 19106, USAwww.jkp.comText copyright Jude Welton 2004Illustrations copyright Jane Telford 2004The right of Jude Welton to be identified as author of this work has been asserted by her in accordancewith the Copyright, Designs and Patents Act 1988.All rights reserved. No part of this publication may be reproduced in any material form (includingphotocopying or storing it in any medium by electronic means and whether or not transiently or incidentallyto some other use of this publication) without the written permission of the copyright owner except inaccordance with the provisions of the Copyright, Designs and Patents Act 1988 or under the terms of alicence issued by the Copyright Licensing Agency Ltd, 90 Tottenham Court Road, London, England W1T4LP. Applications for the copyright owners written permission to reproduce any part of this publicationshould be addressed to the publisher.Warning: The doing of an unauthorised act in relation to a copyright work may result in both a civil claim fordamages and criminal prosecution.Library of Congress Cataloging in Publication DataWelton, Jude, 1955-Can I tell you about Asperger syndrome? : a guide for friends andfamily / Jude Welton ; illustrated by Jane Telford ; foreword byElizabeth Newson. 1st American pbk. ed.v. cm.Includes bibliographical references.Contents: Introducing Adam, who has Asperger syndrome Readingfeelings Tones of voice Playing with others Loud noises Confusing groups Unexpected change Motor skills Specialinterests What is Asperger syndrome?ISBN 1-84310-206-4 (pbk.)1. Aspergers syndromeJuvenile literature. [1. Aspergers syndrome.2. Autism.] I. Title.RJ506.A9W44 2004618.928588dc222003027296British Library Cataloguing in Publication DataA CIP catalogue record for this book is available from the British LibraryISBN-13: 978 1 84310 206 9ISBN-10: 1 84310 206 4ISBN pdf eBook: 1 84642 422 4Printed and Bound in Great Britain byAthenaeum Press, Gateshead, Tyne and WeaTo the special children at Dyke Primary Schoolwho live up to their school motto Think of Othersand to their special head teacher, Ian MacKayContentsACKNOWLEDGEMENTS 8Foreword 9Elizabeth Newson, Early Years Diagnostic CentreIntroducing Adam, who has Asperger Syndrome 1213Reading feelings 1415Tones of voice 1617Playing with others 1819Loud noises 2021Confusing groups 2223Unexpected change 2425Motor skills 2627Special interests 2829What is Asperger Syndrome? 3031How to help 3233How teachers can help 35RECOMMENDED READING, WEBSITESAND ORGANIZATIONS 41BLANK, FOR YOUR NOTES 46AcknowledgementsI would like to thank Elizabeth Newson, who first introduced me to theworld of autism many years ago. A student couldnt ask for a moreinspiring, sympathetic teacher. And when autism touched my life moreclosely than I could have expected, Elizabeth remained an equallyinspiring and sympathetic friend, mentor and advocate. Her encourage-ment and suggestions gave me the confidence to see this book through toits completion.Thanks too to Eileen Griffith, my sons educational psychologist, forher comments and suggestions, and for the unfailing support she giveschildren with autistic spectrum disorders in our area. Id like to thank CarolGray, whose Social Stories have taught me so much, and which continueto help my son. And special thanks go to the other Carol Gray, who hassupported my son at school with such sensitivity and devotion. Indeed,thanks go to all the staff and children at Dyke Primary School for theirunderstanding, patience and care.Thanks to Jane for the wonderful illustrations, and to Joyce Mason forher creative ideas.Many thanks go tomy family for their loving support andunderstanding. Thanks too to Jessica for saying yes, and to everyone atJKP for all their help.But most of all Id like to say thank you to my husband David, and to JJ,our lovely son, who inspired this book.8ForewordThe beginning of the 21st century has seen an explosion in therecognition and diagnosis of Asperger Syndrome (and probablyalso in its actual incidence). Along with this higher profile amongclinicians, parents and the media, has come a determinationamong young people with Aspergers both to understand them-selvesmore fully, and to make sure that other people not only areaware of their difficulties but appreciate their special qualities andtalents.One of those talents being a facility with computers, it is hardlysurprising that many of the early exchanges of views and infor-mation among people with Aspergers emerged via the internet,and the computer revolution has undoubtedly been an importantsource of self-esteem for adults with Asperger Syndrome, whohave increasingly contributed to scientific debate from the inside.However, of equal interest to clinicians who listen to the childrenhas been their capacity to consider their own condition and whatit means to them, often at a surprisingly early age.We came to this by way of workshops for brothers and sisters,where we had identified seven years as a realistic age forexplaining their siblings condition satisfactorily but of coursethese children had good social empathy. I had started experi-menting with writing letters to adolescents with Aspergers(following clinical sessions), which was promising. It was reallywhen I suggested to Edwards parents that (at nine or ten) hemight soon enjoy reading bits of Marc Segars brilliant insidersbook Coping, that their reply (Hes already read a lot of it)mademe start to include seven-year-old childrenwith Aspergersin my explanatory letters.9Glenys Joness optimistic review of research on variousprojects designed to help young people to understand (and sotake ownership of) their Asperger Syndrome confirmedme in thebelief that the sensitive sharing of information can be therapeuticfor the personmost intimately involved, just as it is for parents andsiblings. I was still more convinced by a nine-year-old who, on theway to his diagnostic assessment, told his parents that hisbiggest worry was: Suppose she doesnt know whats wrongwith me?; he needed an explanation of Aspergers before hewent home that day, and insisted that hismother frameandput upon his bedroom wall the letter that I eventually wrote for him.JudeWelton, who would probably not have written this book ifshe had not seen from the inside her own childs need of it, haspotentially extended the scope for sharing the diagnosis, bygiving the young child with Aspergers the power of his own voicein explaining himself to his friends. Her calm and deceptivelysimple approach is complemented by Jane Telfords reassuringlyeveryday pictures.Parents have needed this book for a very long time, and therest of the family will find it a welcome introduction to the enigmathat is Aspergers. It will also be especially helpful to primaryschools, who would love to establish a Circle of Friends for achild with Aspergers if only they could be sure howwell he under-stood himself: clearly, one cannot explain the child to a circle ofhis peers if he himself is not alreadywithin the loop of information.That this book has made the child himself the source of hisfriends knowledge is its particular strength.Elizabeth NewsonEarly Years Diagnostic Centre, Nottingham10 CAN I TELL YOU ABOUT ASPERGER SYNDROME?This book has been written for boys and girls agedabout 715 years old to help them to understand thedifficulties faced by a child with AspergerSyndrome (AS). It tells them what AS is, what itfeels like to haveAS, and how they can help. It is alsoa useful, friendly book to share with children whohave recently had their own diagnosis of ASexplained to them.1112 CAN I TELL YOU ABOUT ASPERGER SYNDROME?I usually call it AS for short.Id like to tell you what it is, what itfeels like, and how you might help me if you want to.You cant see that I have Asperger Syndrome. Ilook like most other boys. But you might noticethings about me that are a bit different. This isbecause AS can make me behave and talk a bit dif-ferently from the way you might expect. Likeeveryone else, people withAS are individuals, andASaffects each person a bit differently. So otherchildren with AS will be like me in lots of ways, butnot exactly the same.Having AS means that I have certain talents andcertain difficulties. I have a very good memory forexample, and know lots of information aboutsubjects that interest me. Im good at maths, andthe computer, and I know lots of facts about thingslike dinosaurs, football clubs, trains and birds.But having ASmeans I have difficulties with somethings that most people dont have trouble with. Mymain difficulties are with what some people callsocial sense understanding and getting along withother people easily.INTRODUCING ADAM, WHO HAS ASPERGER SYNDROME 1314 CAN I TELL YOU ABOUT ASPERGER SYNDROME?I find it hard to understandthe expressions on peoples faces.So its difficult for meto know how they are feeling.Most people dont realize it, but they naturallyknow a lot about what other people are feeling andthinking. Most people can understand body language expressions, gestures and body movements thatgive information about the way people feel and think,and what they are intending to do and why. Its as ifthey can read feelings by looking at someones faceand seeing the expression in his or her eyes. Theycan hear feelings in the way a person talks. This issometimes called tuning in to other people. Mostpeople dont have to be taught how to tune in. Theyjust do it naturally.But I find it very hard to understand bodylanguage, and to know what someone else might bethinking or feeling. It doesnt come naturally to me,and I have to be taught how to do it.You might notice that I sometimes look away fromyou, so that I dont have to look you in the eye. Thisdoesnt mean Im not listening to you, or that I meanto be unfriendly. Its just that looking people in theeye can sometimes make me feel confused anduncomfortable.READING FEELINGS 1516 CAN I TELL YOU ABOUT ASPERGER SYNDROME?Although I understand the wordspeople say, I often find it difficult tomake sense of the tone of their voice.Sometimes I can get confused if people say thingssarcastically. Like if someone says Thats great!,meaning the opposite. I can also find things likemetaphors such as Pull your socks up confusing. Ihave a similar problem with jokes.This is because people with AS think literally, andexpect words to mean what they say. You can help meby being kind if I misunderstand something youvesaid, and maybe by explaining a joke or a metaphor ifI dont get it.I also find it very difficult to tell if someone istalking or acting in a friendly teasing way or abullying teasing way. Other people can usually tellthe difference, but I usually cant. This can make mefeel very stressed, and I might get upset and angrybecause I think youre being unfriendly when yourereally not.I can understand lots of things that some peoplecant (like maths and computers and history). Butplease try to understand that I cant always makesense of some things that might be obvious to you!And if Im feeling confused or stressed, I might sayor do something that upsets you without meaning to.Please let me know if I do that.TONES OF VOICE 1718 CAN I TELL YOU ABOUT ASPERGER SYNDROME?I sometimes find it difficult to playgames happily with other children.Not being able to tune in naturally to other peoplecan make it difficult for me to take turns, or to playcooperatively. If I feel confused about what peopleare doing, or what I am expected to do, I might beafraid to join in with games even if I do want to befriendly. Sometimes things seem to go too fast forme, and I feel muddled about what to do.I might only want to play if I decide on the game,and choose the rules. This isnt just me being bossy.Its because I feel safer and less confused if I makethe rules.You could help me by gently reminding me abouttaking turns, and by taking a bit of extra time toexplain the rules of the games you are playing.Also, please understand that I sometimes need toplay quietly on my own. The world can seem very noisyand confusing when you have AS, and I sometimesjust need to be bymyself, and chill out onmy own.PLAYING WITH OTHERS 1920 CAN I TELL YOU ABOUT ASPERGER SYNDROME?Loud noises can feel painful to me.Most people with AS have what are calledsensory problems they may be very sensitive towhat they taste, touch, smell, see or hear. But thesedifficulties arent exactly the same for everyone.Having AS affects everyone a bit differently.Some people might absolutely hate the touch ofcertain materials against their skin. Others feel painin an unusual way some find light touches painful,for example, while others dont feel pain when mostpeople would. Some people with AS might find itdifficult to cope with certain smells, tastes ortextures of food. With me, its noises that can causethe biggest problems.If Im in a room or a shop with lots of peoplemaking a noise, or if Im in a crowded playground, orif people speak loudly and quickly to me, I can feeloverwhelmed and panicky. Also, if there is a suddenloud noise such as a hand dryer, it can really hurt myears. Sometimes I cover my ears to block out thepainful, confusing sounds, and just want to run away.You can help me by not making sudden loud noises,and by being understanding if I am upset by being innoisy places.LOUD NOISES 2122 CAN I TELL YOU ABOUT ASPERGER SYNDROME?I often find being with a group ofchildren stressful and confusing. Thiscan make me feel angry, and can makeme behave in what seems like anunfriendly way.I usually feel most comfortable with one person Iknow and like. I sometimes misunderstand whatpeople are doing and why they are doing it, especiallyif Im in a group. This can makeme feel very stressedout.If Im confused about what people are doing, I canget frustrated and angry, and might do or say thingsthat seem unfriendly. But Im not really meaning tobe unfriendly: its usually because I feel uncomfort-able and muddled.And sometimes I just feel overwhelmed by all thenoise and sights around me. If I meet lots of newpeople at once, I cant always tell their faces apart,and thats confusing. If the classroom is noisy, I findit really difficult to concentrate, and dont alwaysnotice if someone talks to me. I dont mean to berude.Most people can filter out sounds or sights orsmells, but because I have AS, I cant always do that.Sometimes I feel overloaded with all this input, andI need to be somewhere quiet and peaceful to helpme calm down.CONFUSING GROUPS 2324 CAN I TELL YOU ABOUT ASPERGER SYNDROME?I can get very upset when unexpectedthings happen, or when theresa change of plan that I havent beenwarned about.For people like me who have AS, the world can feellike a confusing place that doesnt always makesense. Routines things that always happen in thesameway or in the same order can be very comfort-ing and help make me feel safe. Routines let me knowwhat is going to happen. I like that. Change meansthings can happen that Im not expecting, and I findthat difficult to cope with.Change is actually much easier to cope with if Imprepared for it. So if we plan to do somethingtogether, and you need to change the plan, please letme know in advance. Then I can be ready for it.People with AS dont usually like surprises.However, doing new things can be fun. As long asIm prepared for a new experience, and Ive beentold exactly whats expected of me and whats goingto happen, Im usually keen to try. If someone canwrite down whats going to happen, rather than justtell me, it really helps.UNEXPECTED CHANGE 2526 CAN I TELL YOU ABOUT ASPERGER SYNDROME?Sometimes I feel really frustratedand fed up because my arms arentas strong as I wish they were.People with AS often have some problems withmotor skills, which means they cant always controland coordinate their body movements as well as theywould like to. They might be a bit clumsy, or haveproblems catching or kicking a ball, or copyingpeoples movements in a dance ormartial arts class.With me, the main problem is that my shouldersand arms arent very strong, which makes somethings like swinging on monkey bars difficult. But Ido lots of exercises that help, and Im graduallygetting stronger and more coordinated.You can help by being sympathetic if I find thingslike sport difficult, and by being patient if youreshowing me how to do something. I might need you toshow me slowly, and more than once.If youre showing me how to make a physicalmovement, it can help if you dont face towards me,but face the same way, standing beside or in front ofme. Then I usually find it easier to copy movements.Itmight help if we both do it facing a longmirror.MOTOR SKILLS 2728 CAN I TELL YOU ABOUT ASPERGER SYNDROME?Im happy and relaxed when Iminvolved with my special interests. Imreally into computers and dinosaurs.Most people with AS have special interests subjects that interest them more than anythingelse. Other people with AS might have differentspecial interests from me, for example stars ortrains or motor racing. When Im doing something onmy computer or reading or writing about dinosaurs, Ifeel very happy and relaxed, and I find it really easyto concentrate and focus.Sometimes, I forget that not everyone shares myinterests and I might want to talk about them toomuch. So if I do go on about dinosaurs for example, Imight need help to change the subject. Please bepatient. It makes me feel safe and confident to talkabout things I know a lot about. But you might haveto remind me that youd like to talk about somethingelse. I might not be able to read your face and knowif youre bored.When people with AS grow up, they might becomeexperts in their special interests. Like me, somecomputer experts have been into computers sincethey were children. Some of them have AS too.SPECIAL INTERESTS 2930 CAN I TELL YOU ABOUT ASPERGER SYNDROME?Why is it called Asperger Syndrome?Is it an illness?Will you always have it?Its named after a doctor called Hans Aspergerwho worked with children in the 1940s. Its not anillness. Its a type of autism, which is a condition thataffects the way the brain processes information.Having this type of autism means my brain is verygood at processing some sorts of information, suchas facts and figures, but has difficulty processingthe sort of information that helps make sense ofwhat other people are thinking, feeling and communi-cating. Both boys and girls can have AS, but itaffects more boys than girls.No one knows exactly why people have AS. Itssomething some people are born with, but it isntusually noticed until they are a bit older. I will alwayshave AS, but as I grow up, I can come to learn mostof what comes naturally to most people. With thehelp of friends and grown-ups, AS can get mucheasier to cope with.Having AS does have advantages. People with ASare often original thinkers, and can become expertsin the subjects that most interest them. Somefamous scientists and artists, such as AlbertEinstein and L.S. Lowry, are thought to have had AS.You never know, I might become a world expert ondinosaurs one day, or develop a whole new computerlanguage!WHAT IS ASPERGER SYNDROME? 3132 CAN I TELL YOU ABOUT ASPERGER SYNDROME?The main way you can help is byrealizing that I have AS, and beingsympathetic.Please invite me to join in but understand that Ican find being in a group stressful. Im not beingunfriendly if I sometimes prefer to be on my own. Please dont speak too quickly. If you do, I cantalways take in everything you say. Please take time to explain the rules of games. I might need help to take turns. Let me know if Ihave to wait my turn, but please try to be patient. Try not to get cross if I misunderstand you. I dont always realize if Ive said or done somethingupsetting or a bit silly. So you may have to tell me ifIve upset you. Please remember that I usually take things literally.I might not understand metaphors, jokes orsarcasm. If possible, let me know in advance if there is achange in plan, so that I can be ready for it. I have very sensitive hearing, so please dont shoutor make loud sudden noises unexpectedly.Remember, other people with AS may have otherproblems with hearing, touch, taste or smell or withthings like bright lights.Try to understand that although I want friends, Idont always know how to behave in a friendly way. Ineed you to be patient and friendly and supportive.Ill try to be the same for you!HOW TO HELP 33How Teachers Can HelpUNDERSTANDING WHAT MAKES ME STRESSEDPlease be aware that I find lots of things at schoolvery stressful and difficult to copewith. Examples are: Choices. I find deciding between one option andanother very stressful. Background noise. Its difficult for me to filter outand ignore background noise. This can makeconcentrating difficult, and can make me feelstressed. Loud, sudden noises from hand dryers to firealarms. Raised voices can make me panic. Some children with AS find school strip lights veryuncomfortable, especially if they flicker. Andsometimes the writing on notices or the boardseems to move about, so its really hard to read itproperly. Unexpected things. Please give me advance noticeabout changes, or things that dont usually happen -anything from a change in timetable, to a differentteacher from usual. If I misunderstand what people want of me, or makesome other mistake, it can make me feel very35stressed and stupid. Social Stories have helped mewith this. Break times. Theres no structure, and I dontalways know what to do. I may need help playing withother children. Perhaps someone could teach mesome playground games, so that I know how to joinin. Sometimes, though, I may need to be on my ownfor a bit. Lunch times are also difficult, mainlybecause of the noise.REDUCING STRESSThere are some simple things that can make a big dif-ference in helping me to feel less stressed and more ableto cope in school. For example: Please give me a timetable so that I can keep trackof whats happening and when in the school day. Ifeel stressed and worried otherwise. I cant usuallyremember just by being told. I need to see it. WhenI was younger I had a visual timetable with icons,but now that Im older, a written timetable workswell for me. Altering the icons on the visual timetable, or notingthe change on the written timetable, helps meprepare for and cope with changes. It helps if I have a Quiet Corner or some otherquiet place to go to when I need a break, because Isometimes get overloaded with stress and the noiseof the classroom. Also, knowing that I have a breakcoming up once Ive completed work can help me toget my work done.36 CAN I TELL YOU ABOUT ASPERGER SYNDROME? Some work sheets look so cluttered withinformation that it makes me feel muddled andflustered. It can sometimes help if the teachermakes the work sheets look less cluttered, perhapsby covering up some examples. Please teach me techniques to reduce my anxiety.Being taught relaxation techniques such asbreathing exercises or foot massage can reallyhelp.TALKING AND LISTENINGPlease be aware that the way you speak affects howmuch I can take in. Also, please understand that I mayappear not to be paying attention when I am. If you speak quickly, I cant usually keep up withwhat you say. Speaking quite slowly, and pausingbetween sentences helps. If you dont say my name at the beginning of asentence, I might not realize that you are talking tome especially if I am in a group. Im notdeliberately ignoring you if I dont respond. If youonly say my name at the end of a sentence, I maymiss the sentence altogether. Adam, please pass methe book is better for me than Please pass me thebook, Adam.HOW TEACHERS CAN HELP 37 Some children with AS may listen better when theyare not looking at the teacher.*Sometimes I feeloverloaded with the information coming in throughmy eyes and ears. Then I might need to listen, butnot look. Im not meaning to be rude. At that time,this may be the only way for me to pay attention towhat you are saying. Please explain yourself clearly. For example, if yousay tidy up, I might not know what to do. If youwant me to collect papers and put them in a tray,please say so. Like most people with AS, I learn best when I cansee what you mean. Rather than just talking, if youwrite things down, or draw pictures or diagrams toexplain things, it helps me to understand andremember.SPECIAL DIFFICULTIESHere are some other special difficulties that canaffect how well I get on at school: If I find a topic difficult or boring, I might getupset or want to give up on it. Being motivated to dothings you dont want to do can be a real problemwhen you have AS. Social Stories, stickers andrewards can help. It can also help if teachers try tofind some link with my special interest or let me38 CAN I TELL YOU ABOUT ASPERGER SYNDROME?* Authors note: Recent research has shown that this can be true ofother children too.spend some time on my special interest as a rewardfor working on the set topic. Occasionally, some subject matter might make mevery anxious, and I may feel unable to cope withlearning about it in class or even watching a videoabout it. Please be understanding if this happens. Like many children with AS, I have problems withmotor skills. I find handwriting and some sportdifficult, and need extra help and understanding.For some children, it helps to have lines to write on. I have a lot of trouble organising myself and mywork. You could help by giving me checklists toremind me what to do and in what order. Examplesare getting changed for PE, packing my school bag,and organising class work and homework. Having AS means that as well as learning the usualsubjects, I need help to learn to understand otherpeople and how to behave with them. Social Storiesand comic strip conversations help me to make senseof social situations. Social skills groups can also help.Please realize that special help with social stuff canmake a huge difference to how well I cancope, andgo on coping as I grow up. Thank you!HOW TEACHERS CAN HELP 39Recommended reading, websitesand organizationsIf you would like to find out more about Asperger Syndrome, here aresome useful books, websites and organizations. Several of the booksare written by people with AS.BOOKSNon-fiction for children and teenagersHall, Kenneth (2001) Asperger Syndrome, The Universe andEverything. London: Jessica Kingsley Publishers.Jackson, Luke (2002) Freaks, Geeks and Asperger Syndrome: AUser Guide to Adolescence. London: Jessica KingsleyPublishers.Both these fascinating books are written by boys with AS, and tell youwhat its like from the inside.Faherty, Catherine (2000) Aspergers: What Does It Mean ToMe? Arlington, TX: Future Horizons.A work-book for children with AS, teaching self-awareness and lifelessons, along with structured teaching ideas for home and school. Areally valuable resource.41Fiction for childrenKathy Hoopmann has written a number of books for children whichfeature children with AS as the heroes. They include:Hoopmann, Kathy (2000) Blue Bottle Mystery: An AspergerAdventure. London: Jessica Kingsley Publishers.Hoopmann, Kathy (2002) Lisa and the Lacemaker: An AspergerAdventure. London: Jessica Kingsley Publishers.For older readersHollidayWilley, Liane (1999) Pretending to be Normal: Living withAspergers Syndrome. London: Jessica Kingsley Publishers.Holliday Willey, Liane (2001) Asperger Syndrome in the Family:Redefining Normal. London: Jessica Kingsley Publishers.These two books are by Liane Holliday Willey, a doctor of education, awriter and researcher. Both she and her daughter have AS, and thebooks give remarkable insights and practical ideas.Pyles, Lise (2002) Hitchhiking through Asperger Syndrome: Howto Help Your Child When No One Else Will. London: JessicaKingsley Publishers.Written by the mother of a child with AS, primarily for other parents. Itsinspiring, informative and full of good advice.Attwood, Tony (1998) Aspergers Syndrome: A Guide for Parentsand Professionals. London: Jessica Kingsley Publishers.The classic text on AS.42 CAN I TELL YOU ABOUT ASPERGER SYNDROME?WEBSITESOASISThis stands for Online Asperger Information and set up in 1995 by Barbara Kirby, amother of a child with AS.She was later joined by Patricia Romanowski Bashe, who also has achild with AS. Together they have written The OASIS Guide toAsperger Syndrome (2001) New York: Crown Publishers. Its aninvaluable source of information, advice, inspiration and support.Tony AttwoodThe homepage of Tony Attwood (see Books above).www.tonyattwood.comORGANIZATIONSUKNational Autistic Society393 City RoadLondonEC1V 1NEwebsite: ++44 (0) 207 8332299USAAsperger Syndrome Coalition of the US (ASC-US)2020 Pennsylvania Ave, NWBox 771Washington DC 20006website: www.asperger.orgphone: ++1 (1) 866 4277747RECOMMENDED READING, WEBSITES AND ORGANIZATIONS 43Autism Society of America7910 Woodmont Avenue, Suite 300BethesdaMD 20814-3067website: www.autism-society.orgemail: info@autism-society.orgphone: ++1 (1) 301 6570881CanadaAspergers Society of Ontario293 Wychwood AvenueTorontoOntarioM6C 2T6website: www.aspergers.caemail: info@aspergers.caphone: ++1 (1) 416 6514037AustraliaAspergers Syndrome Support Network (Queensland) IncPO Box 159VirginiaQLD 4014website: www.asperger.asn.auemail: office@asperger.asn.auphone: ++61 (0) 738 652911Aspergers Syndrome Support NetworkThe Nerve Centre54 Railway RoadBlackburn VICemail: ++61 (0) 398 45276644 CAN I TELL YOU ABOUT ASPERGER SYNDROME?New ZealandAutistic Association of New ZealandPO Box 7035SydenhamChristchurchwebsite: ++64 (0) 333 21038RECOMMENDED READING, WEBSITES AND ORGANIZATIONS 4546 BLANK, FOR YOUR NOTESBLANK, FOR YOUR NOTES 4748 BLANK, FOR YOUR NOTESCoverCan I tell you aboutAsperger Syndrome?:A guide for friends and familyContentsACKNOWLEDGEMENTSForewordIntroducing Adam, who has Asperger SyndromeReading feelingsTones ofvoice Playing withothers Loud noisesConfusinggroups Unexpectedchange Motorskills What is Asperger Syndrome?How tohelp How teachers can helpRECOMMENDED READING, WEBSITES AND ORGANIZATIONSBLANK, FOR YOUR NOTES


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