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Washington D.C., USA, 22-27 July 2012 www.aids2012.org All Hands on Deck: Bringing GIPA into Organizational Governance Models for Representation of People Living with HIV and Affected Communities

All Hands on Deck: Bringing GIPA into Organizational Governance

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All Hands on Deck: Bringing GIPA into Organizational Governance. Models for Representation of People Living with HIV and Affected Communities. WELCOME. Please take a moment to think about your experiences engaging people living with HIV and key populations in organizational governance. - PowerPoint PPT Presentation

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Page 1: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

All Hands on Deck: Bringing GIPA into Organizational

Governance

Models for Representation of People Living with HIV and Affected

Communities

Page 2: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

WELCOME

Please take a moment to think about your experiences engaging people living with HIV and key populations in organizational governance.

Card 1– Write one key issue that you are most concerned about or that you find challenging

Card 2 – List any resources or tool kits to share with the participants

Page 3: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Inclusive Representation in Decision-Making for Historically Marginalized Groups in HIV Work

Models and Key Factors

Page 4: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Inclusion of People Living with HIV and Affected Communities

• Historically excluded communities• Legitimate reasons for mistrust

– Government officials– Medical providers

• Requires:Respect Honesty

Patience Equality

Reflection …

Page 5: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

WHY bring these hands on deck?

HUMAN RIGHTS• Democratic rights to participation

– Involved in distribution of burdens and benefits• Recognition as integral and valued members of the

community– PLHIV and affected communities are part of the

solution– Stigma reduction

Page 6: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

WHY bring these hands on deck?

EFFECTIVENESS• Knowledge of affected communities• Enhances community support and sustainability• Increases democratic legitimacy and accountability• Builds capacity:

– affected populations– government, researchers, and healthcare

workers

Page 7: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Key Factors

• Non-tokenism• Capacity-building• Confidentiality and safety• Diversity within groups/sub-populations• Conflict resolution mechanisms• Anti-oppression approaches to governance and

communication

Page 8: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Key Factors: Relationships

• Trust-building between communities and organization

• Accountability between communities and representatives

• Cross-community relationship building

Page 9: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Page 10: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Structures for representative processes

• Open seats• Formal reserved seats:

– affected communities – subpopulations

• Equal status (50% reserved seats)• Core-observer• Caucuses• Delegations

Page 11: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

More processes for increasing meaningful inclusion

• Community participatory education and selection• Incentives and performance indicators for staff• Publishing the words of affected community members• Forums and pre-meetings of members of

marginalized groups • Community-level initiation of strategic documents • Counter (Shadow) Reports• Commit to Free, Prior, Informed Consent (FPIC)

Page 12: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Addressing Key Challenges in Putting GIPA/MIPA into Practice

Group Work

Page 13: All Hands on Deck:  Bringing  GIPA into Organizational  Governance

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Discussion Guide• Select a note taker and someone to report back.• Answer the following for your set of issues:

– What do you see as the key points of concern? (Try to select 3.)

– Do you know of any successful examples?– Brainstorm ideas. What do you see as the most

promising or most creative ideas?– What resources or conditions do you need to put

in place for these to happen?– What additional information do you need?