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FASDchildwelfare.caA National FASD Child Welfare
Community of Practice
First International Conference on Prevention of FASDShaw Conference CentreEdmonton, Alberta, Canada
September 23, 2013
William Pelech, University of Calgary Dorothy Badry, University of Calgary Deborah Goodman, CAS Toronto Don Fuchs, University of ManitobaSharon Long, Alberta Human Services
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Our Story Our Funders:• Child Welfare Institute, Children's Aid
Society of Toronto • The Public Health Agency of Canada
Our Partners: • Child and Family Services Division, Alberta
Human Services• Faculty of Social Work, University of Calgary• Manitoba Family Services and Corporate
Affairs• Faculty of Social Work, University of
Manitoba• Child Welfare Institute, Children's Aid
Society of Toronto• Factor-Inwentash Faculty of Social Work,
University of Toronto
The Inter-Provincial FASD Initiative
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Our Objectives
• FASD tri-provincial national prevalence study (lead by Dr. Donald Fuchs)
• Provincial inventories of FASD child welfare services (Dr. Deborah Goodman)
• FASD child welfare virtual community of practice(Dr. William Pelech)
• FASD caregiver curriculum/online training(Dr. Dorothy Badry & Dr. Deb Goodman)
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Why Study Prevalence
• Despite the growing body of literature on FASD as a condition that merits greater understanding and appropriate intervention by schools, health care systems, and social services, most of the professional literature acknowledges that the actual prevalence of FASD is still unknown (Burnside, 2012).
Prevalence of FASD in CanadaChildren and Youths in Care
• There are only 2 studies that have estimated the prevalence of FASD among Children in Care in Canada:
• Fuchs et al. (2005) estimated that approximately 11.3% of children and youths in care have FASD in Manitoba
• Burge (2007) estimated a prevalence of approximately 3.3% among children who are permanent wards in Ontario have FASD
FASD Prevalence Study
• Baseline information on how many children in care in Alberta, Manitoba and Ontario are diagnosed with FASD (or are in the process of being assessed for FASD).
• Aim: To help child welfare systems plan for service delivery, training needs, placement development, policy development, and funding projections.
Prevalence: Methodology
• Gathering Prevalence Rates of CIC Three provinces. Alberta, Manitoba and Ontario.
• Developed a common set of definitions.• Developed a data collection tool.• Major Challenge to set in place a data collection
process in each province.• Data Collection completed August 16, 2013.• Report on the Findings Fall and Winter 2013 and
Winter.
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Next Phase of The Prevalence Study
• To set in place continuous data collection processes in each of the participating provinces.
• To extend the Prevalence study process to Saskatchewan and Maritime Provinces willing to participate
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FASD-Related Service Inventories
Completed
• Alberta • Manitoba• Ontario• Nova Scotia• PEI• New Brunswick • Newfoundland & Labrador• North West Territories • Nunavut • Yukon
In Progress
• British Columbia • Quebec• Saskatchewan
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Online Training Focus: Caregivers
• Coming January 2014• Why is it important to have online training?• Many Foster Parents (FPs) reside in rural and
remote communities.• Access to training on caregiver needs for
children with FASD is limited.• A great deal of information exists on FASD
online – limited focus on caregiving.• Online curriculums are often long & focused on
professionals. 10
Online Training Focus: Caregivers Requires
• A process of defining a curriculum.• A literature review on caregiving.• Reviewing information on provincial inventories
and what exists in different communities. • Review of curricula that presently exists online.• Awareness that foster parents often take online
training on foster care through sites in the USA.• Awareness of training needs of FPs modeled
after the FASD Community of Practice in Alberta.
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Focus on Training for Caregivers
• Curriculum to be grounded in best practice in foster care.
• Offered in modules that include social/behavioral and care related concerns specific to FASD.
• Provides insight from leading experts on care issues.
• Offer a self study process.• Provides links to relevant resources for
FPs/caregivers.• Recognizes stress in FPs/Caregivers.
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Foster Care/Caregiver Training –Anticipated Outcomes
• FPs/Caregivers feel confident in their own practice within the home.
• FPs/Caregivers are encouraged to develop their own “model of practice” by working through the modules
• FPs/Caregivers feel empowered to adapt and shape their responses to the care needs of children with FASD.
• FPs/Caregivers act as advocates for children with FASD in their care, with the support of the child’s team of professionals. 13
FASD Child Welfare Community Of Practice: Goals
• Providing current information related to FASD and child welfare
• Promoting collaboration in FASD knowledge exchange
• Creating an interactive multi-faced FASD and Child Welfare Community of Practice (CoP)
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Our Virtual Community of Practice
• Domain: Children & Youth who are affected by FASD and involved in the child welfare system in Canada
• Community: Children & Youth, Caregivers, Service Providers, Policy Maker, Researchers & Educators
• Shared Practice: Inventory of Services, Promising Practices & Establishing Prevalence
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FASDchildwelfare.ca
Unique features:
• Child and Youth focus • Current information
on child welfare related organizations
• Interactive nature of the website
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Let’s Check It Out:
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Main menu bar
Sign up button
Links to help guides
Website Features: Resources
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Resources: Relevant Organizations Database
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Resources: Learning Opportunities
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Resources: Research
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Blogs & Discussion Forums
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Becoming a Member: Signing Up
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Becoming a Member: Signing Up
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The system will send you an email that you have to confirm
Becoming a Member: HowTo Register Guide
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What Can You Do?
• Join Us! By signing up to www.fasdchildwelfare.ca you become part of the community of practice
• Tell others! about our community www.fasdchildwelfare.ca• Post to our Blogs! Share your ideas, stories, innovations,
strategies and concerns by emailing to [email protected]
• Post to our Forums! Share and comment on related news, resources, ideas, important topics to think about on our Forums at www.fasdchildwelfare.ca
• Add your agency to our database! www.fasdchildwelfare.ca• Add new learning opportunity to our database! Conferences,
webinars, professional training, etc. www.fasdchildwelfare.ca• Share related research article, book, or report! Please email to
[email protected]• Email us! Share your thoughts and ideas about how to improve
the website by emailing us at [email protected]
References
• Ardichvili, A. (2008). Learning and knowledge sharing in virtual communities of practice: Motivators, barriers, and enablers. Advances in Developing Human Resources, 10, 541-554, doi: 10.1177/1523422308319536.
• Badry, D. & Pelech, W. (2011). The Fetal Alcohol Spectrum Disorder (FASD) Community of Practice: Promising Practices for Children & Youth in the Care of Alberta Children & Youth Services. Final Report.
• Chudley, A.E., Conry, J., Cook, J.L., Loock, C., Rosales, T., & LeBlanc, N. (2005). Fetal alcohol spectrum disorder: Canadian guidelines for diagnosis. CMAJ, 172(5 supplement), doi: 10.1503/cmaj.1040302.
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References
• Government of Alberta (2013). Fetal Alcohol Spectrum Disorder Alberta Cross-Ministry Initiative. Accessed on May 28, 2013 at http://fasd.alberta.ca/index.aspx
• Popova, S., Stade, B., Lange, S., Bekmuradov, D., & Rehm, J. (2012). Economic impact of Fetal Alcohol Syndrome (FAS) and Fetal Alcohol Spectrum Disorders (FASD): A systematic literature review. Centre for Addictions and Mental Health.
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References
• Stade, B., Ungar, W.J., Stevens, B., Beyen, J., & Koren, G. (2007). Costs of fetal alcohol spectrum disorder in Canada. Canadian Family Physician, 53(8), 1303-1304, PMC1949252.
• Thanh, N.X., & Jonsson, E. (2009). Costs of Fetal Alcohol Spectrum Disorder in Alberta, Canada. Canadian Journal of Clinical Pharmacology, 16(1), 80-90.
• Wenger, E. (2001). Supporting Communities of Practice: A Survey of community oriented technologies. Retrieved from: www.ewenger.com/tech/executive_summary.htm
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Questions?
Thank you!
For further information on the website or this presentation please contact
