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A COLLABORATIVE PARTNERSHIP
SPONSORED BY THE WISCONSIN BPDD
Self-DeterminationMoving Wisconsin Forward
Project Goals
Achieve transformational change in: Self-directed supports Community Supportive Living Community Connections
Develop resources through collaborative partnerships and best practice determined through research and pilots to further self-directed supports, CSL, and Community Connections.
Partner with self-advocates to ensure that resources embody principles of self-determination and person centered practices.
4 Key Grant Areas
SDS Budget authority in Family Care – the person as the customer. Includes identification and testing of creative funding options for self-directed supports
Innovative and sustainable models of Community Supported Living
Innovative and sustainable models of Community connecting
Self-Determination – moving beyond purchased services OR “what money can’t buy” to “creating meaningful life in a community.
Grant Projects
CCCWCare WisconsinLutheran Social Services/CCCWThe Management GroupMy Innovative ServicesBrown County Human ServicesNew Horizon North
Community Care of Central Wisconsin
Mission = Self-Determination
Goal = Successful TimeBank in Wausau
Moving
beyond
• purchased services and ‘what money can’t buy’
To• Creating a life in the
community
I am able to
I would
love to
I am willing to
I would like to learn to I could use some
help togive
receive
sing clean knit drive paint open rake teach write bike wash build arrange sit play enjoy hammer design sew construct assist fold cut show walk watch find hang pick up fill organize share garden type read create cook
One = One
Steering Committee Community membersCCCWThe Neighbors PlaceUnited WayCommunity Club HouseUnitarian ChurchPublic Schooland others
CARE WISCONSIN FIRST
Self-Directed Supports:Listening/Learning Sessions
What we did
Brought members and families together to discuss self-determination and self-directed supports.
Two sessions (Madison and Waukesha)
Four member self-advocates helped plan and facilitate.
Purposes
Self-advocates and Care Wisconsin had very similar goals:
Educate Make connections/share experiences Feedback for Care Wisconsin
Care Wisconsin also wanted to recruit for involvement in ongoing SDS initiatives.
What did we learn?
We all agree in the value of self-determination.
Self-Directed Supports can be difficult to explain and conceptualize in the context of managed care.
It’s hard to find good employees!
What did we learn?
People want to connect with others who self-direct.• Mentoring possibilities?• Group meetings?
Time banking principles are exciting.• Connections to community• Free exchange of time and talents
Connecting and Contributing to My Community
Overview
• Create an approach to strengthen community connections by developing meaningful, inclusive and socially valued roles.
Steering Committee
• Representation• Advocates• Local Businesses• Local School District• Local Community Associations• Local Faith Organization
Steering Committee
• Mission: Inspire meaningful, inclusive and socially valued roles in our
community.
• Vision: Empower individuals to be connected to the community.
• Values: CommunityAdvocacyRelationshipsEquality
Focus Group
• Identified seven individuals currently receiving support who were excited to strengthen current and develop new community connections and valued social roles.
Trainings
• Darcy Elks, a two day workshop on “Supporting People with Multiple/Severe Disabilities to Have a Meaningful Life During the Day;”
• Bob Kann, Keynote Speaker at Marshfield High School Transition Night
Family Governed Southeast Waukesha County: TMG/IRIS ICA Project Overview
Presented to: BPDD SDS Capacity Grant Gathering
TMG/IRIS ICA FGSEWC Project Overview
Two grant Products
“Direct Supporter Recruitment and Retention Resource Guide”
Goal of Guide: Enhance the effectiveness, quality, and longevity of community living support relationships. Guide Contents: Information related to identifying, securing, supporting, and sustaining qualified community living support providers in a self-determined model.
Growing a Family Governed Network Video “Part One: What Motivated Us”Video will capture this portion of the families’ journey, struggles, successes, and motivators.
TMG/IRIS ICA FGSEWC Project Overview
Family Governed Overview Janet Klees Family led Not service based Evolving relationships Long-term commitment Self-advocate and family perspective
Family Talking Point: “Forming a group whose purpose is to help our loved ones with a disability achieve their goals maximizing community supports while establishing an infrastructure that will outlive the primary caregivers is an evolutionary process and we appreciate TMG understanding our groups needs to evolve over time. FGSEWC started forming in May 2011 and it may take until May of 2013 to formally file our articles and bylaws. As the first group in the state to pursue such an arrangement our experiences will help other families that follow.”
TMG/IRIS ICA FGSEWC Project Overview
Grant Partners
FGSEWC Families 8 families and 10 self-advocates (age 15-30+)
Janet Klees, Director of Deohaeko Family Support Network, Toronto, Canada
TMG/IRIS Consultant Agency staff collaborators• Patti Becker, Community Network Specialist• Cindy Nulph, Southeast Area Lead• IRIS Consultants and other IRIS Consultant Agency
staff as needed. Local advocate and stakeholder partners from
IRIS Areas
TMG/IRIS ICA FGSEWC Project Overview
Video Storyboard
TMG/IRIS ICA FGSEWC Project Overview
Guide Overview
Goal: To provide a resource to help individuals who are acting as the employer for their direct-care supporters
Section Topics:
• Who Am I? (Personal story and vision for the future)• All About Working For Me• How I tell you what I need• What I need each day• What I don’t need each day• What you should know about my health• What we do in a crisis• What do we do in an emergency• How I pay for my resources and supports
TMG/IRIS ICA FGSEWC Project Overview
Grant Happenings
Regular Meetings of Group Guide creation Janet web-based meeting and support Video creation Family talking point:
“Our group of 8 families includes a 15 yr. old, two 16 yr. olds, and a 17 year old. When these families become eligible for adult long-term supports, they will have knowledge about how families can work together to maximize the value of unpaid supports and natural supports. The families have a common need for personal life safety training and healthy nutrition and are working to schedule twice a month meetings for the self-advocates to increase their skills in these two areas. It is expected a sibling who has 4H experience will conduct these trainings where many can attend. A two hour orientation about how to work with DVR is also planned as five of the families are preparing to engage DVR.”
TransitionOctober 30, 2013
Transition
Trans-si-tion (tran zish’n)
Process of change: a process or period in which something undergoes a change and passes from one state, stage, form, or activity to another
Background
We will facilitate knowledge of transitioning and self-advocacy
We are focused on identifying the skills, knowledge, and help individuals need to live their life
We will share what we know and learn to help each other!
Transitions...
Everyone goes through changes
You choose how you react
Planning and preparing
Knowing and doing what’s right for you
Focus Group - 6
Individuals Aged 15-18 yearsHigh School
Individuals Aged 19-22Completed 4 Years High School
Individuals Over Age 22
Parents/Guardians of Each Group
What we are interested in learning
What questions you have
What you have learned
What help you need
What has worked/what has not worked
Exploring Possibilities…
In Collaboration with…
Brown County Human ServicesBrown County Transitions Action CouncilCESA 7My Innovative ServicesNortheast Wisconsin Family Care DistrictNortheast Wisconsin Technical College Learning
for IndependenceOptions for Independent LivingPulaski School DistrictShawano County Community Programs
Funded in part by Wisconsin BPDD
This publication was funded by the Wisconsin Board for People with Developmental Disabilities using federal funds provided under P.L. 106-402 through a grant authorized by the U.S. Department of Health and Human Services, the Administration on Developmental Disabilities, and the Administration for Children and Families. The information reported herein was compiled pursuant to the State Plan on Developmental Disabilities. Any opinions expressed do not necessarily represent the position of the Wisconsin Board for People with Developmental Disabilities.
SDS CONFERENCE OCTOBER 2013
Mobile Community Teams: Pathfinders to Self-Determined Living
Self-Determined Living
Our BPDD* Project
It’s About Transformation:An inward transformation must produce an outward
one.
It is one thing to hang a few apples on a pecan tree. It is quite another to grow apples on an apple tree. The latter is a more reliable source of apples. Thus the regeneration of the apple tree, which then produces apples of itself and of natural necessity, is the best, indeed the only way to get apples. But those who claim to be apple trees without producing apples are kidding themselves.
Theodore W. Jennings.
*Board of People with Developmental Disabilities
The Purpose
Availability of Self-Determined Community Living to anyone/anywhere- Goal is to develop a home setting with supports in areas of the
state where it’s not already an option
Sustainability- Cost comparative to other types of 24/7 support services the
person could access
Replicable Doable by people and communities that are interested in this
model, but are just waiting for the right time, right people A home in the community designed through self-directed supports
up to 24/7 should be available to anyone with a disability who needs ongoing and more intensive support services in their home.
The Plan
Person seeking a home setting
+ Support Circle
+ Pathfinder Team
Self-Determined Living Targets
Person directs his/her own supports and services
Person’s choice of where and with whom to live
Non-regulated
Person’s own home- leased or owned by the person, not an agencySupports an ordinary, typical life in the community as a full citizen
Alternative to other types of 24/7 support services for people with disabilities
Who is providing the needed support?
What the support looks like?
Where he/she spends time during the day and how that time is structured?
The Outcomes
One person will have a self-directed living setting somewhere in Wisconsin.
A way to bill for the service
Partners
Person and/or his or her allies
New Horizons North (grantee)
Link-Ed
IRIS—TMGInControl
DHS
MCO’s
What we mean by “mobile’
Self-Determined Living should be an option for people with
disabilities anywhere…but it’s not
There are only some pockets of Wisconsin where it’s happening because
not enough people/families/providers know yet how to do it
So, we’re taking a group of people on the road to teach others
(anywhere) how to develop SD Living by doing it with them
After the SD Living is set up, the development team fades from the
situation, other than some ongoing support from a Support Broker/Specialist
that is also customized
Endless Possibilities & Key Ingredients
A person needing support services that are typically 24/7 in
nature
A circle of support (family/friends) around that person who are motivated to help the person
design a customized approach to those needed support services
A values based approach to the
development of those support services
KEY:Self-direction
Customized--Individualization (to the person receiving support services)
Community Connection and Full Citizenship for the person needing support
We need you
Are you seeking a place of your own?
Contact:New Horizons North
514 West Main StreetAshland, WI [email protected]
The New Horizons North Team: Deanna Yost, Jennifer Felty, Consult 715-682-7171 ext 35 Ann Marie Mackin 715-682-7171
CONVERGE
Uniting People with Purpose
Focus
Develop a functional portal and provide outlets (some include utilization of social media through Internet usage, etc.) to assist individuals in making connections with the focus on moving away from staff-directed relationships to true self-directed relationships.
Basic aspects of project
Educating our organization the importance of “real relationships” and the benefits/rewards of real relationships and how we will incorporate this within an individual’s care plan
Choosing five individuals that we provide supports to who will serve as our pilot group
Educating and assisting the identified individuals on making connections or helping to enhance current connections they already have and the benefits/rewards of real relationships
Creating an “individual’s life map” (being developed as a computer based program) to illustrate the connections they have within their community and provide an area to on
Allowing the selected individuals to provide feedback on their experiences (both positively and negatively).
Challenges
Understanding caregiver role Unintentional influencing of decision making Safety versus right to take risks
What to measure Identifying barriers and access vs. number of
relationships Success for who?
Targets
By 09/16 - Pre-survey chosen pilot participants
09/20 - Training of staff directly involved with pilot participants (share project goals, their role, etc.)
10/11 - Dennis Harkins training to chosen individuals, families, supports, and staff. Then immediately begin using tools to assist in building community connections
12/2 – Dennis Harkins follow-up meeting
Tools
Tools
Data
Data
Data
Data
Pre – Post Survey
Personal Experiences
I have relationships with family and friends I care about.
People for whom I feel love, friendship, and intimacy are involved in my life. These relationships allow me to share my life with others in meaningful ways and help affirm my identity. To the extent that I desire, people who care about my well-being and me provide on-going support and watch out for my best interests.
I do things that are important to me.
My days include activities such as employment or volunteer opportunities, education, religious activities, involvement with my friends and family, hobbies, or other personal interests. I find these activities enjoyable, rewarding, and they give me a sense of purpose.
I am involved in my community.
Engaging in the community in ways that I enjoy provides me with a sense of belonging and connection to others. Having a presence in my community enhances my reputation as a contributing member. Being able to participate in community activities gives me opportunities for socialization and recreation.
Choice
I decide how I spend my day.
Making choices about activities of daily life, such as sleeping, eating, bathing, and recreation enhances my sense of personal control, regardless of where I live. Within the boundaries of the other choices I have made (such as employment or living with other people), I am able to decide when and how to do these daily activities. It gives me a sense of comfort and stability knowing what to expect in my daily routine. It is important to me that my preferences for when certain activities occur are respected and honored to the extent possible.
I decide where and with whom I live.
One of the most important and personally meaningful choices I can make is deciding where and with whom to live. This decision must acknowledge and support my individual needs and preferred lifestyle. My home environment has a significant effect on how I feel about myself and my sense of comfort and security.
Pre – Post Survey
Outcomes A lot Some Not Much Not at all Unsure 1. I have relationships with family and friends I care about.
How often do you see your family?
“I spend time with my family in ways that are important to me.”
“I have friendships/relationships with people that I choose.”
I have friends to spend time with.
2. I do things that are important to me.
“I find meaningful things to do during the day”
“I am active in ways that are important to me”
I find ways to give back to my community.
3. I am involved in my community.
The activities I choose help me get to know my community. The activities I choose help my community get to know me.
I know about things to do in the community I am living in.
I am able to participate in community events and activities when and how I choose.
4. I decide where and with whom I live
I make decisions about where I live.
I make decisions about whom I live with.
I had more than one option to choose from when deciding where to live.
5. I decide how to spend my day. I control what I do during the day (set my own schedule).
I do things I want to do each day.
I work in a job that I chose.
