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  • 2016 Researchers Guide to the

    USRDS Database

  • 2016 RESEARCHERS GUIDE TO THE USRDS DATABASE

    Table of Contents

    Preface ................................................................................................................................................................................ 1

    Acknowledgments .............................................................................................................................................................. 1

    USRDS Coordinating Center ................................................................................................................................................ 1

    NIDDK Project Officers ........................................................................................................................................................ 1

    Suggested Citation .............................................................................................................................................................. 1

    Introduction ........................................................................................................................................................................ 1

    USRDS Website: www.usrds.org ................................................................................................................................. 1

    Requesting Data .......................................................................................................................................................... 1

    RenDER ....................................................................................................................................................................... 1

    Whats New in 2016 ............................................................................................................................................................ 2

    Changes to 2016 SAFs ................................................................................................................................................. 2

    Getting Started .................................................................................................................................................................... 2

    Basic SAS Use .............................................................................................................................................................. 3

    SAS Formats for USRDS Data ...................................................................................................................................... 4

    Comment Lines ........................................................................................................................................................... 4

    The SAF Directory ....................................................................................................................................................... 4

    SAS Examples ...................................................................................................................................................................... 5

    Example 1: Patient Cohort Included in USRDS Annual Data Report (ADR) ................................................................. 5

    Example 2: Incident Cohort ........................................................................................................................................ 5

    Example 3: Incident Patient Distribution by Demographic Data ................................................................................. 6

    Example 4: Point Prevalent Cohort ......................................................................................................................... 6

    Example 5: 2005 Incident Patient Survival Rates (Kaplan-Meier) .................................................................... 6

    Example 6: Merge With Medical Evidence File (CMS 2728).................................................................................... 7

    Example 7: 2008 Incident Patient Survival Rates (Kaplan-Meier)............................................................................... 7

    Example 8: Waiting List Access Rate ........................................................................................................................... 8

    Example 9: Create a Patient Cohort of 2008 Medicare Primary Incident Patients ................................................... 9

    Example 10: Total Admission Rate.............................................................................................................................. 9

    Example 11: First Admission Rate ............................................................................................................................. 11

    Example 12: Total Cost and Cost by Service Type ..................................................................................................... 13

    Methods & Databases ....................................................................................................................................................... 14

    Section 1: ESRD Data and the USRDS ESRD Database ....................................................................................................... 14

    Data Sources ............................................................................................................................................................. 14

    Section 2: ESRD Patients ................................................................................................................................................... 19

    Identifying ESRD Patients .......................................................................................................................................... 20

    First ESRD Service Date ............................................................................................................................................. 20

    Death Date Determination ....................................................................................................................................... 20

    Transplant Dates ....................................................................................................................................................... 21

    Graft Failure .............................................................................................................................................................. 21

    Medicare and Non-Medicare Patients ...................................................................................................................... 21

    Section 3: Treatment History ............................................................................................................................................ 22

    Treatment Modality Categories ................................................................................................................................ 22

    How Treatment Modality is Determined .................................................................................................................. 22

    The 60-Day Collapsing Rule ...................................................................................................................................... 23

    Integration of the CROWNWeb and CMS Claims Databases .................................................................................... 26

    Determining Lost-to-Follow-up Periods .................................................................................................................... 26

    Section 4: Payer History .................................................................................................................................................... 26

    ESRD Payer Sequence File ......................................................................................................................................... 26

  • Pre-ESRD Payer Sequence File .................................................................................................................................. 27

    Data Sources ............................................................................................................................................................. 27

    Payer Categories ....................................................................................................................................................... 27

    How the Payer Category is Determined ................................................................................................................... 27

    Gaps in the Payer History ......................................................................................................................................... 28

    Section 5: Medicare Claims ............................................................................................................................................... 28

    Introduction .............................................................................................................................................................. 28

    CMS Data Sources ..................................................................................................................................................... 29

    Patients and Time Periods Included ......................................................................................................................... 29

    File Structure......................................................................................................................................................

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